I Love to Share Good News!

Today was a good day. If you have followed Caleigh's journey with epilepsy, you will know our joy. Quick (Conner is timing me!) recap if you're new to our story--Caleigh began having brief moments of being "out of it" when she was in kindergarten. An MRI ruled out tumors (Yea!) and an EEG confirmed multiple seizures (Boo!). Then they got worse.  After trying every medication available for her type of epilepsy, we were sent to an epileptologist at Texas Children's Hospital in Houston. He tried some meds again, and added some NOT commonly used for her condition. Nothing worked. By the winter of 2010-2011, she was seizing approximately every 90 seconds 24 hours a day. No bueno. We agreed to have her undergo vagal nerve stimulator implantation in May of last year, and the results have been stunning. She has essentially been seizure free for several months now. We were initially told that she would be tapered off medication IF the surgery went well, then we were told that she would be on them indefinitely. Last winter we were told that we could try tapering them off this summer. Today we saw our SA neurologist, who has agreed to taper her off ONE of her meds...the ugly one. He made me look him in the eye and say that I understood that it might not work, and that it could cause her to begin seizing again. But hey, this girl is amazing. We are going to give it a try. If all goes well, in 8 weeks she will be completely off the medicationwehate. Your continued prayers over the next 8 weeks would mean so much to us. Go Caleigh Go!